Sigh…

This sweet girls EEG didn’t go as we hoped. The steroid regime didn’t work and her brain is still constantly misfiring when she’s sleeping. Now we wean off prednisone and neuro consults and tries to throw something else at her and pray it sticks. Meantime, monitor on any time she’s sleeping and rescue meds/oxygen in arms reach. 😭 #LennynStrong

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