Hospital update

Lots of messages I haven’t been able to respond to so figured I’d update here: It looks like Lennyn is developing Lennox-Gastaut Syndrome which is a progressive epilepsy syndrome that causes tonic and atypical absence seizures and intellectual disability. It is common in kids with brain injuries like she sustained at birth. 90 percent of these patients have drug resistant epilepsy (still holding out hope she isn’t here yet) and are at increased risk for sudden death from epilepsy. This is pretty devastating news and we’re really scared so if you could just send us all the good juju, and prayers, and whatever else for a miracle, that would be so greatly appreciated. Her MRI also showed an unrealated lesion in her brain. Waiting to hear back from neurosurgery- but neurology think it’s probably nothing. #LennynStrong


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