Lennyn had a massive seizure again today. It’s about the 6th seizure this month. Forever grateful for Ava. She is literally the best sister and caregiver on the planet. She recognized a focal seizure and got my Dad to help administer rescue meds because Seth and I were not home, all while getting Lennyn hooked up to the monitor so I could keep an eye on her saturation’s remotely. Huge thank you to Pasco County EMS for getting here quick when her rescue meds took forever to kick in and my Dad for riding in the ambulance with Lenn to meet us at the hospital. And as always, huge thank you to St. Joes Children’s Hospital for welcoming us with open arms for the 3rd time this month. Epilepsy fucking sucks. #Lennynstrong

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