New diagnosis

Lennyn was officially diagnosed with Autism today. ASD associated with a known medical condition, to be precise. It’s been a long road (and a long wait for a good developmental ped) but we’re finally opening some doors and cutting some red tape to therapies she desperately needs. Hopefully this is the final diagnosis for the […]

Advertisement

Read More New diagnosis

Neurology update

I haven’t posted a neuro update in a while because I don’t want to jinx the streak we’ve been on. In the epilepsy world, when it’s going good, you don’t talk about it. The Bug went for a follow up EEG today, to get a new baseline a few months into new meds. I figured […]

Read More Neurology update

Caitie’s Classroom

Lennyn’s original wish was to meet Caitie and Tobee from Caitie’s Classroom but because of Covid and her health we had to come up with a more realistic wish. Caitie and Tobee still wanted to make sure Lennyn knew how loved she was! How special! 😭 Thank you so much friends ♥️ #LennynStrong

Read More Caitie’s Classroom

Make-a-wish

Absolutely blown away with the generosity of Make-A-Wish. Lennyn wanted to go camping, and now she’ll be camping in style, wherever, whenever. 😭♥️ #LennynStrong

Read More Make-a-wish

This girl has a super special day ahead of her! #LennynStrong

Read More

EEG Results

Lennyn update: Good news: her eeg has improved since she was hospitalized. Leaving the LGS diagnosis in her chart so she is approved for certain meds, but she doesn’t have a concrete diagnosis YET. Bad news: her eeg still looks messy and she could further progress to a concrete diagnosis. Good news: there’s a lot […]

Read More EEG Results

Big Day!

Big EEG day for Lennyn. Prayers in overdrive that she doesn’t have LGS and her amplified seizures were a horrible side effect of a medication she is now off of! #LennynStrong! 💪🏻💪🏻💪🏻♥️

Read More Big Day!